Where people with MS, caregivers, and professionals get and give advice.
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I often sleep with socks over my hands to keep myself from scratching off my own skin. Itching is part of the family of abnormal sensations that are neurologic in or ... read more
Brad M
Living with Multiple Sclerosis Male
4
To best manage my MS I try to stick to a schedule for eating and sleeping. I wake up every morning around 5:00 a.m., but I make sure I'm in bed by 9:00 p.m. every ni ... read more
AngelKitty
Living with Relapsing-Remitting MS Age: 66 Female More than 5 years
0
QUESTION OF THE DAY:
When fatigue sets in, this is the best thing I can do for myself:
Probiotics may help with MS. There are two kinds of gut microbes — those that are pro anti-inflammatory and those that provoke the immune system, causing inflammatio ... read more
Dr. Lev Kalika
Healthcare provider for Multiple Sclerosis Age: 48 Male
11
Read different articles that help you identify vitamins and supplements that help with MS, and incorporate them into your daily medication list. Always consult your ... read more
Living with Secondary-Progressive MS Age: 55 Male More than 5 years
3
I have MS, however I won’t allow it to take over me.
Living with Relapsing-Remitting MS Age: 57 Female More than 5 years
6
The atto foldable scooter gives you so much freedom. Easy to fold, fits in boot of car and on trains. Does not look like an old person’s scooter
Living with Secondary-Progressive MS Age: 54 Male More than 5 years
3
Make time for fun. Pleasure is often the first thing to go after an MS diagnosis as you become worried about fatigue and meeting your responsibilities. But taking ti ... read more
Rosalind Kalb, PhD
Healthcare provider for Multiple Sclerosis
9
For my intense muscle spasms and cramps at night I take a turmeric curcumin supplement. I get it through Amazon and it comes every two months. I can’t live without i ... read more
Living with Primary-Progressive MS Female More than 5 years
6
Apple slicer
Living with Primary-Progressive MS Age: 39 Female More than 5 years
0
You just have to find a way to live with MS. Find ways to work around it. I have a husband and daughter who help me so much. I guess the best thing I can say is I’ve ... read more
Amanda
Living with Relapsing-Remitting MS Age: 48 Female More than 5 years
8
Ask a lot of questions. Learn as much as you can about your MS and the treatments. Understanding your diagnoses completely will help you make the best health decisio ... read more
@sierralanae
Living with Relapsing-Remitting MS Age: 23 Female More than 5 years
3
There are many causes of stress for people with MS, from constant readjustment to ‘the new normal’ to loss of control and relationships. And from coping with both in ... read more
Rose Reif, MS, LPCA, CRC, BC-TMH
Healthcare provider for Multiple Sclerosis Age: 37 Female
4
A "Squatty Potty" stool and a toilet cushion are helpful for challenging movements when using the bathroom.
Living with Relapsing-Remitting MS Age: 43 Female 1 to 5 years
1
Fast Fact
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.
Neurology
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.When it comes to getting the disease-modifying therapy you need, a key thing I learned early on is “if no is the first answer you get, don’t stop there.” Oftentimes, ... read more
Laura Kolaczkowski
Living with Relapsing-Remitting MS Age: 65 Female More than 5 years
1
My favorite gadget is my helping 'hand' for picking up items I've dropped. It does have its limitations, however, but you soon get used to assessing its capabilities ... read more
Living with Primary-Progressive MS Age: 67 Male More than 5 years
3
Try using a professional-grade mandoline in the kitchen. I really enjoy making soups and stew, but it's too much chopping. Using a mandoline has really helped! And I ... read more
Jen H
Living with Relapsing-Remitting MS Age: 47 Female More than 5 years
5
Poll
What’s the best thing you’ve done to manage MS at work?
MS is a remitting and relapsing auto-immune disease which leads to demyelination of the central nervous system. The treatment is primarily medication to suppress the ... read more
Dr. Maria Vila, DO
Family Medicine Specialist in Morristown, NJ Healthcare provider for Multiple Sclerosis Female
4
Before you rent or a buy a wheelchair or scooter, work with an occupational or physical therapist to review what your goals are and how the use of a wheelchair or sc ... read more
Caitlyn Foy
Healthcare provider for Multiple Sclerosis
4
Topical medical marijuana helps with spasticity and pain relief. In CT, I had to obtain a license from the State, for me and for caregiver, in order to purchase.
Living with Primary-Progressive MS Age: 75 Female More than 5 years
4