Where women with endometriosis, professionals, and caregivers get and give advice.
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Never give up -- we know our bodies better than anyone! Find support from other endo sufferers to help you navigate the emotional turmoil that comes with this diseas ... read more
Julie J
Living with Endometriosis Age: 28 Female More than 5 years
2
Don't take no for an answer!
Living with Endometriosis Age: 30 More than 5 years
2
QUESTION OF THE DAY:
How would you advise another woman to find treatment for endo?
Be wary of medications. In my experience, they only treat symptoms temporarily.
Heather Guidone
Program Director at the Center for Endometriosis Care in Atlanta Living with Endometriosis Age: 48 Female More than 5 years
8
Insist on more testing if they won't do a laparoscopy for diagnosis.
anahnuhmuds
Living with Endometriosis Age: 40 Female More than 5 years
5
I got a bidet! That might sound indulgent, but I've found being able to rinse my vagina with warm water really calms down the nerves.
Mona Wellington, author, "The Angry Vagina" Living with Endometriosis Age: 44 1 to 5 years
2
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Is Your Doctor Qualified for the Job?
When to Get a Second Opinion
Find out if your health insurance plan covers acupuncture. I found an acupuncturist who was willing to discount my fees if I paid out of pocket and went often.
Danielle R.
Living with Endometriosis Age: 35 Female More than 5 years
4
Stay as active as possible and strength train if you can. A strong core (not just abs -- your entire core) makes a world of difference when it comes to managing pain ... read more
Shannon
Living with Endometriosis Age: 34 1 to 5 years
1
Poll
What’s your top strategy for managing endo pain?
Attend live patient events like The Endometriosis Summit. It helps you to learn the latest on the disease and makes you feel connected to the Endo Community — you ne ... read more
Living with Endometriosis Female More than 5 years
3
Eat on a regular basis. For me, having an empty stomach produces gas and pressure around the pelvic area.
Living with Endometriosis Age: 34 1 to 5 years
5
I eat chocolate when I know I'm about to throw up. It doesn't taste as bad.
Katie
Living with Endometriosis Age: 31 More than 5 years
9
I use IBgard (a peppermint oil supplement) for GERD and IBS. And I've found that colonic massage from my GI and pelvic floor PT helps calm flares.
Living with Endometriosis Age: 54 More than 5 years
6
Listen to your body. If it is telling you that something isn't right, something probably isn't right. If your body is telling you to rest, then rest. Ignore all of t ... read more
Michel
Living with Endometriosis Age: 35 More than 5 years
1
Red meat is a big trigger for my pain so I avoid it.
Mona Wellington, author, "The Angry Vagina" Living with Endometriosis Age: 44 1 to 5 years
2
Believe in yourself. If a doctor doesn't believe you or is making you feel "crazy," leave. I've walked out on several doctors and continued to do so until I found a ... read more
Tabitha Britt
Living with Endometriosis Age: 25 Female More than 5 years
2
It's important to take control of your own care. If you're only offered medications, ask for complementary therapies. Look into pelvic physical therapy. Look into na ... read more
mlb10
Living with Endometriosis Age: 28 More than 5 years
4
Many women with endometrosis suffer from infertility. The positive news is that IVF offers an option for women with endometriosis. See your physician; let him or her ... read more
Kecia Gaither, MD MPH FACOG Healthcare provider for Endometriosis
2
Fast Fact
1 in 10 women has endometriosis, making it almost as common as diabetes.
Join Nancy's Nook on Facebook and find an endo specialist. If period or pelvic pain leaves you shaking on the bathroom floor between rounds of vomiting, and your doc ... read more
Gravity33
Living with Endometriosis Age: 35 More than 5 years
4
Self-care is very important for anyone who suffers from endometrosis. This can take many forms, including avoiding overcommitment both at work and socially around pe ... read more
Dr Anne Henderson, Consultant Gynaecologist, TOTM Healthcare provider for Endometriosis
1
Eat a clean diet! Eliminating processed foods (which included sugar and gluten) helped me immensely!
Amy
Living with Endometriosis Age: 42 More than 5 years
