Who Should Be on Your Eosinophilic Esophagitis (EoE) Treatment Team?

Who Should Be on Your Eosinophilic Esophagitis (EoE) Treatment Team?

Who Should Be on Your Eosinophilic Esophagitis (EoE) Treatment Team?
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Looking for an eosinophilic esophagitis (EoE) doctor? Whether you've just been diagnosed or you've been managing the condition for a while, it's likely you'll need more than one healthcare professional to tackle all the issues that might come up.

A chronic inflammatory condition characterized by accumulation of eosinophils — a type of white blood cell — in the lining of the esophagus (also known as the food pipe), EoE can cause mild to severe symptoms like difficulty swallowing, chest pain, food getting stuck in the esophagus, and backflow of undigested food.

A treatment team is necessary to address your EoE symptoms and any potential complications that could arise, says Felice Schnoll-Sussman, MD, a gastroenterologist at Weill Cornell Medicine and NewYork-Presbyterian in New York City.

"There are multiple, different care team members that will be pulled into the patient's treatment plan, based on response to therapy and the patient's individual needs," she says. "Working with a team of professionals that are adept at managing the complexity of these cases is essential." Here's a look at who you might need on your treatment team.

1. Primary Care Provider

If you have EoE, your primary care provider will play a very important role in your care. They're often the ones who give an initial exam that leads to an EoE diagnosis, says Subhankar Chakraborty, MD, a gastroenterologist at the Ohio State University Wexner Medical Center in Columbus.

"They tend to be the ones who first recognize symptoms of EoE, such as trouble swallowing, then they make the referral for specialist care, usually to a gastroenterologist," he says. "From there, they'll be helpful for patient education and for addressing medical issues that may be happening along with EoE."

Common conditions that may develop alongside EoE (known as comorbidities) include:

Other potential comorbidities that could happen alongside EoE include autoimmune disorders and neurodevelopmental disorders, but these are less common, says Dr. Chakraborty.

2. Gastroenterologist

A gastroenterologist is often at the center of the EoE care team, says Dr. Schnoll-Sussman. They will perform the initial endoscopy to make the diagnosis and ongoing endoscopies to see whether your treatment is working for you. (An endoscopy is a procedure used to look at organs and tissues inside the body using an endoscope, a thin, flexible tube with a light and sometimes a camera attached.)

"A gastroenterologist will usually be the one to decide on a medication plan that might include proton pump inhibitors, topical steroids, or biologics, and would monitor the effects of these in someone with EoE," says Chakraborty. "That doctor will also coordinate with other members of a health team to ensure that care is being provided on multiple levels."

In addition, if you have esophageal strictures — when the esophagus narrows, making it harder for food and liquid to get to the stomach — a gastroenterologist would help identify treatments that could relieve that constriction, she says.

3. Allergist or Immunologist

Tests for food or environmental allergens, performed by an allergist, may play a role in EoE management, especially if you’ve ever had any food intolerances or allergic reactions, says Schnoll-Sussman.

"If dietary elimination therapy is needed, an allergist may recommend which foods are going to be avoided," she says. "The allergist may manage other conditions, such as seasonal allergies, as well."

Between 50 and 80 percent of people with EoE have allergic disorders like asthma, atopic dermatitis, and food allergies.

In some cases, EoE may not manifest with allergies at first, but they can develop over time. That’s why regular monitoring by an allergist or immunologist is important, Schnoll-Sussman says.

4. Registered Dietitian

For some with EoE, dietary changes are necessary to relieve symptoms, says Schnoll-Sussman. For instance, your health team may put you on an elemental diet, which involves temporarily avoiding all foods and instead drinking a formula containing amino acids, short-chain triglycerides, and short-chain maltodextrins combined with vitamins, minerals, and electrolytes. This is designed to reduce inflammation and is utilized until symptoms begin to improve.

Those with EoE who have suspected food allergies or intolerances may also be guided through an elimination diet to identify trigger foods that worsen their symptoms.

An elimination diet involves temporarily avoiding certain foods and then reintroducing them in a certain order to see which ones may be triggering your symptoms.

"Because of potential changes or eliminating certain foods, dietitians can be essential as part of an EoE health team," Schnoll-Sussman says. "They ensure proper nutritional requirements are being met as well.” That’s because people with EoE are more prone to deficiencies of certain nutrients, such as calcium and vitamin D, especially if they have to avoid certain foods.

“[Dietitians] also provide education in reading labels and lifestyle changes," says Schnoll-Sussman. For example, they can help you learn to identify packaged foods that may contain your triggers, as well as ways to avoid accidental cross-contamination (when your allergens may be accidentally or unknowingly introduced into other foods, like at a restaurant or buffet).

5. Mental Health Professional

At times, a mental health professional such as a licensed therapist or social worker may be necessary to help manage anxiety, depression, or stress related to a chronic illness.

"It can be very hard to manage food-related diseases, because they can affect lifestyle choices on a daily basis," says Dr. Schnoll-Sussman. "This can be especially difficult for young children and adolescents." Research suggests that at any age, EoE can lead to mental distress, which can sometimes worsen EoE symptoms or make them more frequent.

Questions to Ask Your Doctor

  • What seems to be triggering my EoE? Do I have an underlying disorder or disease?
  • Am I more likely to develop another disease as a result of having EoE?
  • Do I need allergy tests? If so, which ones?
  • What is my treatment plan in terms of medications?
  • Are there lifestyle changes I need to make to manage EoE more effectively?
  • Are there ways I can modify my diet to minimize EoE symptoms? If so, what are they?
  • How can I know if treatment is working?
  • How often will I need follow-up care?
  • Which tests or procedures will be part of monitoring my EoE?
  • How will my treatment plan change if my symptoms get worse?

The Takeaway

  • Eosinophilic esophagitis (EoE) is a chronic inflammatory condition involving the esophagus and often requires treatment from multiple medical specialists.
  • In addition to a gastroenterologist, you may need a primary care doctor, allergist or immunologist, and registered dietitian nutritionist to address different aspects of your condition.
  • A mental health professional can also be helpful for EoE, since the condition can cause anxiety, depression, and stress.

Resources We Trust

EDITORIAL SOURCES
Everyday Health follows strict sourcing guidelines to ensure the accuracy of its content, outlined in our editorial policy. We use only trustworthy sources, including peer-reviewed studies, board-certified medical experts, patients with lived experience, and information from top institutions.
Resources
  1. Eosinophilic Esophagitis. Mayo Clinic. July 2024.
  2. Comorbid Conditions of Eosinophilic Esophagitis. American Academy of Pediatrics. June 2023.
  3. Eosinophilic Esophagitis. National Library of Medicine. May 2015.
  4. Elemental Diet. Cleveland Clinic. November 18, 2021.
  5. Martina Votto, et al. Diet Therapy in Eosinophilic Esophagitis. Annals of Surgical Treatment and Research. January 2022.
  6. Food Elimination Diet for Eosinophilic Esophagitis (EoE). University of Wisconsin Health.
  7. Visaggi P et al. Food elimination diets in eosinophilic esophagitis: Practical tips in current management and future directions. Best Practice & Research Clinical Gastroenterology. February–March 2023.
  8. Six-food elimination diet (SFED). American Gastroenterological Association. March 2021.
  9. Willemijn de Rooij, et al. Mental distress among adult patients with eosinophilic esophagitis. Neurogastroenterology and Motility. December 2020.
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Michelle Seguin, MD

Medical Reviewer

Michelle Seguin, MD, is a board-certified family medicine, lifestyle medicine, and certified functional medicine physician (IFMCP). She is a practicing physician at Root Functional Medicine, a leading telemedicine practice specializing in personalized, root-cause care.

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Elizabeth Millard

Author
Elizabeth Millard is a freelance writer based in northern Minnesota. She focuses on health, wellness, and fitness, and has written for Runner's World, Bicycling, Self, Women's Health, Men's Health, Prevention, Experience Life, and more. She is an American Council on Exercise–certified personal trainer and a Yoga Alliance-registered yoga teacher. She graduated from Harvard University with a bachelor's degree in English.